THE SURRENDER AGENDA
“No other condition in the history of modern medicine has been neglected in such a way as Ehlers-Danlos Syndrome.”
I was in my 40s when in 2022 I was finally diagnosed with Hypermobile Ehlers Danlos Syndrome. It was a relief, it was overwhelming and it was confusing. I knew I had multiple symptoms and issues and I knew that they couldn't all be in my head. These couldn't just be anxiety or that I was depressed. It couldn't be normal that my injuries were taking so long to heal or that I was feeling so so tired even in lockdown.
What I really wasn't prepared for was the pain. And that I had been in pain, always in pain since I was a child. And that there would be no comfort from the pain. All I could do was manage it.
I floundered about for a while with no real direction. I was still overwhelmed and tbh I was confused because I had been told that by my age and family history, I'd likely figured it out anyway.
I have spent over 18 months learning about pain, my pain, what it is and isn't and how to manage it. I know that it cannot be cured. I know that all I can do is make pain lessening choices.
"I'll do it myself"
The Surrender Agenda
AVAILABLE FORMATS
Lorraine in Pain
But then after suggestions from the NHS pain physio and several therapists and a wonderful content creator I began to write and write and write about pain and how it has been a huge character in my life.
The Surrender Agenda
It turns out that I had to make a choice and embrace change, embrace pain and instead of fighting a losing battle with pain, I decided to love pain. It is my witty and honest journey of learning to accept and Love my pain.
This is my story.
