THE SURRENDER AGENDA
“No other condition in the history of modern medicine has been neglected in such a way as Ehlers-Danlos Syndrome.”
I was in my 40s when in 2022 I was finally diagnosed with Hypermobile Ehlers Danlos Syndrome. It was a relief, it was overwhelming and it was confusing. I knew I had multiple symptoms and issues and I knew that they couldn't all be in my head. These couldn't just be anxiety or that I was depressed. It couldn't be normal that my injuries were taking so long to heal or that I was feeling so so tired even in lockdown.
What I really wasn't prepared for was the pain. And that I had been in pain, always in pain since I was a child. And that there would be no comfort from the pain. All I could do was manage it.
I floundered about for a while with no real direction. I was still overwhelmed and tbh I was confused because I had been told that by my age and family history, I'd likely figured it out anyway.
I have spent over 18 months learning about pain, my pain, what it is and isn't and how to manage it. I know that it cannot be cured. I know that all I can do is make pain lessening choices.
"I'll do it myself"
The Surrender Agenda
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Lorraine in Pain
But then after suggestions from the NHS pain physio and several therapists and a wonderful content creator I began to write and write and write about pain and how it has been a huge character in my life.
The Surrender Agenda
It turns out that I had to make a choice and embrace change, embrace pain and instead of fighting a losing battle with pain, I decided to love pain. It is my witty and honest journey of learning to accept and Love my pain.
This is my story.
