Last week during #InvisibleDisabilitiesWeek I spoke on a huge stage in Portugal about my life with Hypermobile Ehlers-Danlos Syndrome and pain. It was incredible to share this stage with fellow CEMSie Leonardo Lotto who I finally met - we had been due to meet in London in 2023 but my eyes had other...
Lorraine Ansell takes a look at why Diagnosis is so necessary for those with chronic conditions.She lists five points that are very important....
Bruising is the body's sign that something has happened. In Lorraine's case, bruising happens far too often due to Hypermobile Ehlers-Danlos Syndrome....
When do I shout BINGO? Most of my medical records are still Lloyd George and I have seen the absolute encyclopaedia Britannica stack that it is so it is going to take a long time to scan in all those records. These conditions are the ones that have either been officially diagnosed and I have the all...
Scarring is a key issues with Hypermobile Ehlers-Danlos Syndrome and Lorraine considers her scars, how some can be beneficial and how to care for them....
The one where Lorraine Ansell finds purpose in her pain. And learns that movement is essential even with a chronic condition....
Lorraine Ansell finds out that having hEDS has given her a chance to look at change a new - the waiting in the wings before real change...
The one where Lorraine has a pain in her head - is it real or not? Find out what the ENT found!...
Lorraine Ansell looks at her life in dance and realises that issues with tissues mean that she has had to change and say goodbye to some of her passions and find new purpose with her pain. Maybe a change of movement and or mindset might be the thing?...
How to choose glasses when you have short sight. I talk about frames, scans, lenses, coatings and much more....
I went a little viral this week. I did a TikTok that showed me with “my ladies.” It takes a village to get me going every day and my ladies are the tools of my treatment. My chronic condition means that I pull muscles daily, even standing still or sitting still. I struggle with switching...
What does pain actually look like? Well before you decide read about me and my journey with pain....
Hey all, I’ve been working on this for a bit and now I want to give a big cheer to my condition that is an often overlooked professional asset. Hypermobility. I was finally diagnosed Q4 in 2022 and I have come to realise how much of a benefit this super power actually is. Super powers...
Welcome my lovely pickles, I hope you are all keeping well. I have been on a rollercoaster of a ride over the past few months so please help me by taking my hand, being gentle because my legs are wobbly after being let off the ride. Also I need a sit down because whoaaaaa what a journey it has been....
In September 2022 I was finally diagnosed with Hypermobile Ehler-Danlos Syndrome. I met this diagnosis with a sense of fist bump validation. At first. After all, I’ve spent 4 decades having odd and strange symptoms, quirky behaviours and enough outfits changes to rival a long running Broadway...